Friday, January 10, 2014

She is getting harder and harder to wake up at night... I wish even if it's every other night just to let her sleep... I understand she needs the calories but she need sleep just as much, you grow when you sleep... She has been pooping like crazy these last two days... But we found out that her urine and stools were a total of 14, so her Urine is getting super close to normal... We haven't heard any test results yet, but we think her pooping so much could be a reason for her weight loss... She is weigh in this morning at 9.10, which is still an ounce lower than yesterday morning... She didn't lose or gain today, so we have maintained our 9.10 weight... They did try to blame me on giving her extra water... They said her urine is still diluted.. I have asked an asked the nurses to help me give her a bath and they always forget... So I decided to give her one this morning..well I didn't have a wash cloth so I used a bottle to was her hair... The doctors felt that her hair was wet this morning when they came in... I didn't realize they took the bottle that I used for her hair with them this morning... They came back an hour or so late and said "I saw this bottle with water in it, are you sure you aren't giving her water" and I explained that I had no other way to wash her hair and I asked for help several days and I couldn't wait any longer.. They replied "ok, her hair was wet, but we want to ask to make sure.. Can we take your bottles and you can have them back at discharge, this way it's all on us and we can rule you out"... I said ok, but was so hurt... I really hope that they see I am not doing this to her... She has some rare disorder that no one can figure out.. But I hope that this proves once and for all it's not my fault... We did have therapy today... Her shoulders and reaching is gettin much better... Today we work on leaning forward and putting weight on both her arms, working on pulling up, building tummy muscles... Not sure if we will receive results this weekend or not.. But I'll be sure to post when I know.. Just pray for us.. I have been so positive throughout this whole journey till now..