Saturday, January 11, 2014

Maddie has turned into such a heavy sleeper... She doesn't sleep much during the day but I am pretty sure she would sleep all night if she was allowed to... She had extra blood work done this morning, other than her usual electrolytes test.. I forgot the medical term but it's to check to see if she is retaining extra fluid... I have a feeling that it will say she will because they did it right after her 6am feed... They have to send it to an outside hospital to test it but we should know by Monday, as well as the cystinosis test... Other than that, it's been a calm, rainy, lazy day... She was 10 pounds this morning ( 6 ounce gain), but then we lost 4 ounces this evening (9.12)... Her urine output was 9, and with stool makes it 12... So we are almost normal... I just don't know that her pooping so much is normal but they haven't said anything...we are gettin so homesick, and it's hard that I don't get to see Bryson this weekend... Oh and before I forget, cell service is terrible here and my phone doesn't always ring, but our room phone number is 9196815105...call anytime