Monday, January 13, 2014

Before I begin, I want to apologize that the blog is repetitive that it gets boring...i know it's not fun reading the same thing over and over, but I want to thank you from the bottom of my heart for taking time to read it... It means so much that everyone is thinking and praying for us, and again I am sorry that it gets boring to read.. I will hopefully have the results soon, and then it be different.. But in meantime, thank you for your patience... We had a really good night..after all our visits yesterday, Maddie fell asleep for the night about 8pm... She had to eat at 9pm, and was very unsuccessful... We were putting her up in the air, a cold wash cloth but nothin woke her up... It took her an hour to eat 3 oz, and then at midnight 2 oz.. I just really wish they would let her sleep..she now has started to not eat as much and is throwing up quite a bit of it... No fevers and she is happy, I think she is gettin overly full and just spitting it all up... She did gain 6 oz over night, making her weight 10.3, and I'm pleased to announce that even though we lost 3 oz tonight we are still 10 even..her urine is normal now.. It was at 5 yesterday and mixed with her poop was a total of 8.. She was pricked this morning to check her sodium and it dropped down to 140, we are both happy that she does not have to drink salt water anymore... We had therapy today... We took a break from her holdin her weight, to working on her reaching by laying her on her side.. We did work on holding her hands and letting her pull up as much as she could.. This also helps her keep her arms straight.. Her shoulder muscles are doing good cause she will keep her arms in front of her.. But we still struggling on keeping her arms straight.. Thanks again everyone for reading... We love you all