Friday, December 13, 2013

So, not much to post about tonight.. she had a very good night..They let her go a whole 6 hours without eating..She ate at 1am, then we had to wake her up to eat at 7am or else she would have gone longer... It was a wierd day, when she wasnt sleeping (which was a lot today) she was screaming... the endocrinelogist came in to see us this evening but she didn't have any more ideas either...They have mentioned doing a CT scan on her head, hopefully the beginning of next week..this will help them see the whole brain, unlike what the ultrasound showed...they are looking for some kind of syndrome (I apologize that I don't remember the name of it), basically the hypothalamus tells the body that it doesn't need the nutrients and they don't gain weight...As, again, they think this is unlikely because 1) she did so well her first month of life, and 2) she has gained weight, they want to be able to rule that out as well.. Kids with this syndrome just never gain weight, and even though we have trouble gaining, she does still gain...on a bad note she did lose a pretty good amount of weight today, 4 oz making her 8.7oz... We did get to see our cousins Melanie and Bump again today, and talk about spoiling my baby...They brought her more blankeys, as we all know how much she loves them, and binkies (so we have spares), not to mention spoiling mommy with chicken nuggets and bryson with bubbles to play with when he comes tomorrow... we have appreciated all the love and support that everyone has shown... We feel God's presence and gives us peace, and even though we may not understand why this is taking so long, we do put our full trust in Him "I wait for the Lord, my soul waits, and in His word I put my hope" ... Psalm 130:5 Even though this could be a long journey for us, we have hope that we will find out what is wrong so we can fix it and can grow and be healthy. Continue to remember us, especially for patience and confidence