Sunday, December 8, 2013

Happy 4 MONTHS old to my sweet baby girl... today was an interesting complicated day...she slept so good...only woke up one time to eat...the doctor came in and told us that her metabolic testing she had done yesterday came back mildly elevated ...nothing to concerning...however her urine analysis came back with what they call "reducing cells" which has to do with glucose levels....so it could be a possibility that she has a carbohydrate deficiency...but they want to test it again to see if it was false positive or if that is something we need to look more into...so they gave her miralax this morning to help her relieve herself..and indeed she did...however we have tried to put the bag on her for the urine analysis test 4 times...and have still not been able to do it...she has pooped in it twice or just peed around it....we have to give her a break now because it has rubbed her raw and she is quite sore...the only other thing we had today was the general genetic testing...they had to draw 4 ml. Of blood from her...this just test many differbbt types of mutations...and it has made her quite sluggish...and last but not least her weight stayed the same at 8.5...which im very thankful for especially since she had 3 bowel movements today... God knew just how much she loves the Little Mermaid... so we hate a date night watching the movie on the Disney Channel..she was very weak from all the blood so she slept most of it but it still meant the world to me to be able to cuddle her during the movie... i hope every body is safe at home and not out in the ice..we are still praying to find answers soon, but understand these things takes time... im very faithful that God has given these doctors the wisdom and knowledge that they need, and that he will get us home soon