Saturday, December 7, 2013

What an awesome night me and Madison had..she ate around 1130...slept till 330...ate then slept till 730...we got results of the sweat test and it came back normal which is a blessing but we are still at square one...so we have started metabolic testing...she had two heel pricks done today..one for a basic metabolism protein test and the other one is for liver proteins....we got told that pathology doesn't work on weekends and we should know by Monday about her rectal biopsy..she also had another urine test just to be safe for infections..and the last thing we did was give her a suppository...and we will start miralax tomorrow...she is still having alot of trouble passing stools..on a positive note she did gain 2 ounces making her weight 8.5....it was a very good day being able to spend alot of time with my sweet Bryson..we got to look at the fishes and play in the playroom, we played in the sink with water and of course ate like pigs... thats the hardest part of all of this..not really being able to be a mother to my Bryson for the past 8 weeks.. and unfortunately because of the weather me and Tim both decided that it was best for Bryson for them to go on home.. breaks mommys heart but im hoping that we will be able to be home for his birthday next Saturday...