Wednesday, December 11, 2013

She had a pretty restless night..she slept ok but would spit out her bink, but once I put it back in her mouth she was fine...they originally planned to change her formula to the alimentrum amino acid based formula..She had a normal 8oz bottle at 20 Cal level instead of the 27 Cal like normal to see how she would handle it...just like we figure she threw up some of it..so we have decided to keep everything the same...we again didn't see any doctors again today...the nurse told us that since she is gaining they aren't going to do anything else...we called our pediatrician and uva wouldn't let her access Madison's chart..so I did sign the paper to give our pediatrician permission to let her see what they have done...but they want to send us home Friday and our pediatrician isn't ok with that ...and is going to call Duke to see if they have recommendations...She lost 2 ounces today, making her weight 8.9...I am glad she is gaining I just don't know why she is losing to, and all her feedings are monitored... But UVA made it clear that they arent going to do any more testing and just to monitor her weight and then we can go home...which obviously doesn't answer our problem.. but if we have to sit here and not see any doctors I much rather sit at home...and then if we still have problems our next step is Duke, which our insurance will cover because we were admitted here.. so I am not sure what the next few days hold but as always Ill keep everyone updated... My idea is that we stay till sunday and monitor her weight every night... she has always had a doc appointment on the 16th for her 4 month shot, so then we could get weighed, the go back at end of week to see our progress and go from there... I will run that by the nurse tomorrow and she what she thinks, but since she lost weight today they may keep us any way though the weekend.. I hope I didn't confuse anyone..its still just as frustrating as ever... but on a happy note we did get a visit from our cousins Melanie and Bump.. and they have spoiled me rotten with chicken nuggets and fries...we loved having their company..it gets lonely here sometimes..