Saturday, December 14, 2013

First of all, HAPPY 2nd BIRTHDAY to my sweet BRYSON. Like I figured it was not a really good night... she got up to eat several times and woke up for a few minutes to poop...Crazy girl... today we went for a MRI on her head today to test for diencephalis syndrome (which the brain tells the body it doesnt need nutrients)...we tried it without sedating her to see if they can get what they want... she was wrapped in a blanket then put in this mat thing that clipped all across her body... the only thing you could see was her head sticking out...she looked like a human hotdog... I got to lay on the bed and go in the MRI with her... they said it was very difficult but they think they got what they wanted..we still waiting on the resulting to see...Well, they have started making us force feed her, and she has spit up some with each feeding.. we think the scale is off because when she weighed in tonight she was 8.14...which is a 7oz gain overnight...just seems so crazy, and she pooped 3 times today..but I was thankful that the doctor came in to tell us that it is for fact not a calorie deficiency, cause she is eating more than she needs to and still on some days loses weight..well I was very very happy that I have gotten to spend some time with my birthday boy.. we got to eat cake and we shared it with the nice nurses.. he got a mickey coloring book, mega blocks in a wagon, a farm, some tractors and a jacket..she is totally rotten.. we all got to walk to the other wing to see there pet bunny name "Lola", and got to all walk down and eat dinner together as a family which we havent gotten to do in a long time... Parents love on your babies, cause when you have to go so long without seeing them, its very heart breaking