Wednesday, January 8, 2014
Wednesday, January 8, 2014
All I can say is that I am glad I have a good support system... Today has been aggravatin, that we have barely left the room all day... I feel hurt that I can't feed my baby... I feel like they are trying to blame me especially since we have had big and different changes today... All they say is that they need to make sure every drop is getting into the bottle... All you got to do is pour it, makes me feel like they think I'm doing something... She weighed in at 9.5 ( 11 ounce gain), which sounds impossible to all of us except the nurses and doctors... The tonight she gained 2 ounces (9.7).... I do nothing different and I don't understand why her urine has gone down to 14 and why she gained so much when I have done nothing different... They said it will take several days, but it hurts my feelings tremdously... We had therapy today... Adding arm circles to the rest of our exercises... She is starting to bend it more, so I can see that therapy is helping a lot... The other changes were that she hasn't eaten her whole bottle since 6am... Her 9am and noon feed, she ate 5 ounces and her 3pm feed only ate 3 oz, and this past feeding she at 4 1/2oz... I just don't understand and I don't want them to blame me.. I would never hurt my baby... We decided that the hearing test is not important enough to sedate her and do it, so we are going to scratch that... We are going to talk about maybe weening her off the sodium supplements since her electrolytes have been good for a while... And hopefully we will know some test results tomorrow... But that's all for now.. Just been a bad 5 month birthday
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Hang in there kiddo. You are a good mommy and you are doing a great job being so far from home and by yourself there with Madison. God is in control and that's where you get your strenght. We love you and Madison and just look at God is answering all these prayers going up.
ReplyDeleteWe love you, and are praying daily. Don't let the "watching" you wear you down -- it's less about you and more about what they might observe as Maddie feeds. If it helps them find the answer -- praise. If it helps them rule out that she's not being "fed correctly" -- praise. I know it's frustrating, and I'm sorry. God's timing is perfect...but it's so hard to wait. Love you.
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