Tuesday, December 3, 2013

We had a fairly difficult first night at UVA...she was still up about every 2 hours still clawing and screaming with her head... We only have one lounge chair so Tim and I alternated shifts with her... she was very very restless... she woke up in a fairly decent mood and continued to have an appetite through the day. They did an ultrasound early this morning on her head...everything came back normal... they dont want to do an MRI unless last resort because of the anthesia and her being so small... They were going to do a rectal biopsy to check for hirschsprung disease, which is where the nerves in the large intestines isnt quite developed.. The surgeons who do that came in and decided to hold off on that unless the gi doctor felt necessary... she isnt showing the signs for that disease which include not passing a stool at birth and straining to go...her problem is that she doesnt go enough. They did some lab work and the only thing that came back today was the hemoglobbins which were normal. The pediatric surgeon came in to evaulate her and did find that she had enlarged lymph nodes in her groin area which could mean a number of things such as a blockage or inflammation...so we will talk more with the gi doctor tomorrow about that...but that is a good start to helping her pass stool more frequently.. last but not least was her weight... she was 8.0 here yesterday on our "dolphin" scale.. and was 8.6 on the same scale... we don't think that that is quite accurate since she did have a bowel movement today and we held off her eating... but regardless it is a gain and that is a good sign...worries me about tomorrow if she was to drop some though.. just very hard to believe almost a half a pound gained in one day when we do same thing at home... but we are here for a while and will find answers soon we did have some very awesome visitors today... my good friend Brooke Conner came up and visited for a while. She goes to school here and it meant so much that she took time out of her busy finals schedule to come see us... and my cousins Melanie and Bump drove an hour... they got to see Maddie at her screaming fit and fighting sleep so bad.. but it was so good to see them...and some awesomely funny clowns.. who gave me the "seal" of approval mom sticker.. so i am definately assured that my mommy skills are the best for this sweet girl of mine.