Saturday, December 28, 2013 ( all today)

We had a good night... Woke up every three hours and ate like a champ on the 24 calorie diet... She was weighed and it showed her weighing 9.0 even... We didn't celebrate because that was a 11 oz gain from yesterday which made no sense to us at all... We weighed her in an hour later and it was more accurate, weighing in at 8.6 (a one ounce gain)... She did continue to have over accessively wet diapers but when we saw the kidney doctor today he didn't have any other ideas to run... She had a lot of hormone blood work done (12mls taken) and one of them is the vasopressins... Which is a hormone in the pituary gland in the brain which tells the brain not to concentrate the urine so that's a big key we are waiting on too... It's been a difficult day... She had to do a water deprivation test... which tests to see if her urine is being concentrated...we had to fast her for 12 hours, which means she wasn't able to eat at all...she ate at 10:30am and is now finally being able to eat for first time and its 10:30pm...but the Good Lord was with us, and she didn't fuss at all for whole day of not eating...this maybe partly because of the fever that she had today (which just went away on its own) or the amount of blood they took this morning, so she slept most of the day...they did get some urine from the cotton balls we had to stick in her diaper, and it was a yellow color, instead of the clear that it has been, which was good, meaning that her kidneys are working right, but we had to have the blood work to finalize if she passed, which she did...overall this means that she is getting to much protein or water in her food, so tomorrow we will talk about putting her on a 20 cal diet, which is what a normal baby eats...this could be the big answer we have been waiting for, but to soon to tell... we are unsure of why UVA, wasn't concerned cause she had the same output levels of urine there as she has had here.. when they did the blood work tonight, she did have a heavy metal test done, just to check her chemical levels, to make sure she hasn't been exposed to something, its just one of those other things we can rule out.. we did find out that since UVA isnt certified to do sweat test, she will have to have that redone, which could take up to 5 or 6 days, but the main thing today was the urine, and im sorry if it seems confusing, it is to us as well... not sure how reducing her calories is going to reduce the water amount... but can't hurt to try, and see how she does.. ok now some positive things, we did have some good friends visit us today... Linda and George Libey...we use to bowl with them and they are so very very sweet... and they brought her a new buddy (a owl or penguin, we can't tell HAHA), and our awesome GOD has put the Little Mermaid on tv for us to watch with her, she deserves her favorite movie after being starved all day.