Sunday, December 15, 2013

Sunday, December 15, 2013

It has been a fantastic birthday weekend... she had to be waken up at midnight, 3am and 7am to eat, but overall did very well...they are still force feeding her which is not helping our situation cause it makes her very fussy with a belly ache... the MRI came back normal as we expected, and was very thankful that they got what they needed and she didn't have to be sedated..so tomorrow we will see a geneticist again about the Russell Silver Syndrome, which is where babies don't grow at birth or after, but these babies usually have a low birth weight, a disporportional head, and slower development, which she has none of these things, but it rules it out too...she is just such a mystery to us all... She did not gain but did not lose, weighing in at 8.14oz (almost to 9lbs YAY).. hoping we can keep a good weight so we can enjoy Christmas at home before going to Duke... around lunch time, we got to go enjoy lunch with Grammy (Tim's mom)...she came and brought Bryson some balloons, and candy for mommy and daddy... Madison even got to join us for lunch so it was very nice...we also got to play in the playroom for a little bit, before it was nap time for both Maddie and Bryson...during nap time, Tim gave me my Christmas present, an Iphone 4, which my tempered 2 year old allready dropped it, but good thing for cases, so its been fun trying to figure it out..Now we are visiting with our MawMaw (my mom), and she brought Bryson this huge Mickey snowglobe that plays music and blows snow, and both of my kids love it... It has been such a good weekend, and I really hate to say bye to everyone that came today... but right now we need to get my baby healthy

2 comments:

  1. So happy to hear that all of you had a great week-end. Still praying for little maddie and all of you. Hang tough! Love & Prayers.

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  2. I have been following your blog everyday and figured it was about time I wrote on it! Maddie appears to be doing very well, but with the amount of faith & love in this family, that doesn't surprise me :) Glad Bryson had a nice birthday and it sounds like he was blessed with some awesome gifts! We all love you so much and sending big xoxoxoxoxxoxo from NH!!! Auntie Gail & Uncle Mike

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