Sunday, December 29, 2013

What a night.. She was up most of the night catching up on her eating... At this time she was still eating on the 24 calorie...we had a fairly calm day today... She was weighed at 5am and she didn't gain but didn't lose, still weighing 8.6... Which is a blessing she didn't lose since she didn't eat for 12 hours... She had more blood work done today... This was for her fat soluble vitamins ( C, D, and K)... And to make sure her electrolytes are still normal... Since she was concentrating her urine...we decreased the calories once again to the regular 20 calories... She then will have her urine tested again tomorrow morning to see if she is able to handle the regular amount of protein... If she can't concentrate her urine.. Then it means there is some kind of rare genetic protein abmorality that we will have to test for... If she does concentrate her urine, then it means that this could be the problem all along and we can add fat tablets to catch her weight up... Her heavy metal test needed urine to go with the blood tha was collected last night, so we bagged her twice and finally got it sent off... There is a genetic test that she has given blood for... And it's a sugar molecule test.. To make her all her sugars are being absorbed properly... So we signed the consent form to have that sent to California to be tested... That's all the medical news... Our favorite part of the day was getting visitors from Tim's grandma, aunt Melanie, and cousin Katie... They spoiled my little maddie with clothes and other toys.. And had a very nice time with them today... It meant a lot to me that they came... Sad news is Daddy had to go home and return to work tomorrow... But Bryson needs daddy too... This is the longest time I have ever not been able to see Bryson... But we have explained to him quite often what's going on... I hope everyone haves a good night.. And keep remembering us as hopefully we are getting closer to the answer