Thursday, December 12, 2013

Madison had a pretty good night...and slept well but for some reason I did not... I think after almost 2 weeks in here, the chair is finally making me feel like Im 90 years old.. well after Tim had a confrontation over the phone yesterday about the doctors not coming in, they finally came in this morning... they were shocked that she lost weight after having such good gains over the past few days...I told them that this was our normal routine... the only thing left that they can think of doing is having an endocrinlogist come in and evaluate her and see if he has any more ideas on what to try... The pediatrican doctor admitted that they may not be smart enough to figure it out and that transfering us to Duke might be the next step, but we going to see what the endocrinlogist has to say first...he didnt come in today so I am really hoping that we will see him tomorrow... Her zinc levels came back find, and that blood test also tested her thyroid again and it was fine as well... the growth hormone was part of the blood work as her zinc but that is still pending along with the basic genetic testing... she is eating 5 ounces of the 27 cal, instead of 4 ounces cause little miss piggy doesn't get full... she did put back on her 2 ounces that she lost yesterday, making it 8.11oz.. My favorite part of the day is when I got a visit from my cousin Ted Johnson who I havent seen in about 3 years... we have always been really close and I enjoyed catching up with him.. he was so sweet and brought me a fruit basket (since he knows how much I love fruit), and Madison a Christmas balloon which she absolutely laughs at for a good while.. i have really missed him and glad that he finally got to meet Madison.