Thursday, December 5, 2013

We had a really good night again... She woke up and 1230 and 330 to eat and then didn't wake up again till 830. The residents came in and told us that the sweat test was going to be done, blood work to check her amino acids, and the rectal biopsy... however they did not come and do the sweat test again, and have promised once again it will be done early tomorrow morning... it better be or else this will be one mad mommy...cause being friday means they wouldn't do it till monday and im not waiting that long since they are thinking its a good chance she could have cystic fibrosis... She did get her amino acids drawn right before noon, so she was able to take about a 2 hour nap before the rectal biopsy began... The surgeons do not think that its hirchsprung disease because she didn't poop while they were doing the procedure...she is however very constipated and a 15 minute procedure took about 45 minutes... The went up through her bottom and cut tiny pieces of the large intestines...but there was so much stool in there they had to scrape some out before they were able to get what they needed... She did good with not spitting up until after her 230 feeding and then she has thrown up small multiple amounts pretty much like yesterday... but on a bright note..she didn't gain but didn't lose..we are still at 8.4... but because they measure in grams here she might have gained a few more grams then yesterday... we did get to visit with Brooke again today...and she was so sweet and brought Maddie a "its a boy" bear HAHAHA... and a book for me to read... and we also got a visit with Mawmaw, Amy, and Broden today... we had dinner together and they got a taste of the fussy Maddie that i have to deal with all day... but im hoping the sweat test is done tomorrow and that they will consider testing her for other things while we wait for the results... i was glad we had some stuff done today...